I was diagnosed initially in 1992 when a long flat brown freckle appeared on the right side of my neck. The biopsy results stated it was “precancerous” and that it was Lentigo Maligna. At this time they removed all the moles from my body, around 20 or so. Only the one on my neck came back precancerous. In 1996 I noticed the spot had returned in the same place, only this time is was blackish pencil eraser blister looking thing.
My 14-year-old son was diagnosed during this same time with desmoplastic small round cell sarcoma so to me, Shaun had real cancer and mine was just an ugly spot. My son lost his fight in 1998.
It wasn’t until 2000 that I went to the doctor again. I had a biopsy done again Diagnosis: Malignant Melanoma. Clark’s Level 3. Tumor Thickness 1.45mm . They removed 5 sentinel lymph nodes. They said the nodes were all clear and I had nothing to worry about. No treatment or follow-up was recommended.
It all started in June 2009, I had a shadow in a chest X-ray. Multiple CT, MRI, PET scans later and a biopsy at Mayo Clinic found me to have Stage 4 Melanoma and gave me 6-9 months to live.
And thus…my continuing saga continues!